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Chamber and committees

Question reference: S2W-16801

  • Asked by: Roseanna Cunningham, MSP for Perth, Scottish National Party
  • Date lodged: 30 May 2005
  • Current status: Answered by Andy Kerr on 6 June 2005

Question

To ask the Scottish Executive what information was given to patients treated with Scottish factor VIII prior to 1987.


Answer

The Report Hepatitis C and Heat Treatment of Blood Products for Haemophiliacs in the mid 1980’s, published in October 2000, a copy of which is available in the Parliament’s Reference Centre (Bib. number 36612), discusses the information that was given to patients.

According to the Report, Haemophilia Centre Directors believed that patients and parents were informed of the risk of hepatitis as part of general education on haemophilia and its treatments, including:

use of educational material, including that produced by the UK Haemophilia Society;

education for patients and carers about home treatment with factor concentrates;

hepatitis warning signs and cross-infection precautions, in haemophilia centre treatment areas, and

national and local meetings of the UK Haemophilia Society.

Details on the actual information provided are not held centrally but would be available from the Haemophilia Directors.