Question reference: S6W-26827
- Asked by: Sue Webber, MSP for Lothian, Scottish Conservative and Unionist Party
- Date lodged: 11 April 2024
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Current status: Answered by Jenni Minto on 2 May 2024
Question
To ask the Scottish Government, further to the answers to questions S6W-23717 and S6W-23718 by Jenni Minto on 19 December 2023, whether it is aware of any specialist services for children and young people with myalgic encephalomyelitis (ME) in Scotland, and, if it is the case that it is not aware of any such services, what plans it has to address this.
Answer
We recognise the importance of good quality care for children and young people living with ME/CFS.
Children and young people with ME/CFS can experience a wide spectrum of symptoms and may require input from clinicians from a variety of specialisms. We know there is no ‘one-size fits all’ response and a focus is required on coordinating existing care. Whilst children and Young People are not included within the scope of the current Neurological Care & Support Framework strategy, those who need assessment by a consultant or other professional can access this after an appropriate referral, normally from a GP, and can be referred to any further services as required such as paediatric medical specialities, paediatric physiotherapy and occupational therapy.
The provision of healthcare services is the responsibility of local NHS Health Boards, taking into account national guidance, local service needs and priorities for investment. Whilst our 2023 survey of health boards’ arrangements for ME/CFS care did not identify any ME-specific specialist services for children and young people, Boards are expected to ensure that patients have access to a range of professionals to provide the appropriate management of their condition.