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PE01463: Effective thyroid and adrenal testing, diagnosis and treatment

Health

Petitioner: Sandra Whyte, Marian Dyer and Lorraine Cleaver

Status:
Lodged

Date Lodged: 19 December 2012

Calling on the Scottish Parliament to urge the Scottish Government to take action to ensure GPs and endocrinologists are able to accurately diagnose thyroid and adrenal disorders and provide the most appropriate treatment.

Petition History:

Summary:

5 February 2013: The Committee took evidence from Sandra Whyte and Lorraine Cleaver. The Committee agreed to write to the Scottish Government, the General Medical Council, the Royal College of Physicians, Thyroid UK, the World Health Organization, the Scottish Intercollegiate Guidelines Network, Dr Stefan Sjöberg at Karolinska Institutet, Sweden and Dr Henry Lindner, Pennsylvania, USA. Link to Official Report 5 February 2013 (374KB pdf)

16 April 2013: The Committee agreed to write to the Scottish Government. Link to Official Report 16 April 2013 (472KB pdf)

28 May 2013: The Committee agreed to invite the Cabinet Secretary for Health and Wellbeing to give evidence at a future meeting and write to the Medicines and Healthcare products Regulatory Agency and Amdipharm Mercury. Link to Official Report 28 May 2013 (471KB pdf)

25 June 2013: The Committee took evidence from Alex Neil, Cabinet Secretary for Health and Wellbeing, Lesley Metcalf, Policy Manager, Clinical Priorities Team, and Alpana Mair, Deputy Chief Pharmaceutical Officer, Scottish Government. The Committee agreed to hold a round-table discussion at a future meeting. Link to Official Report 25 June 2013 (499KB pdf)

1 October 2013: The Committee took evidence in a round table format from— 

Michael Matheson, Minister for Public Health, Professor Graham Leese, CMO Specialty Adviser for Endocrinology, Sinéad Power, Policy Team Leader, and Lesley Metcalf, Policy Manager, Clinical Priorities Team, Scottish Government; 

Sandra Whyte, Marian Dyer, and Lorraine Cleaver, Petitioners; 

Tara Wilmott, Head of Approvals, Education and Standards Directorate, General Medical Council; 

Dr Anthony Toft, Consultant Physician, Spire Murrayfield Hospital, Edinburgh; 

Lyn Mynott, Chair/Chief Executive, Thyroid UK; 

Professor Graham Williams, President, British Thyroid Association and Treasurer, Society for Endocrinology. 

The Committee agreed to defer consideration of the petition to a future meeting to await completion of the work being undertaken by the Scottish Government. Link to Official Report 1 October 2013 (477KB pdf)  

18 February 2014: The Committee agreed to write to the Scottish Government. Link to Official Report 18 February 2014 (463KB pdf)

20 May 2014: The Committee agreed to write to the Scottish Government. Link to Official Report 20 May 2014 (491KB pdf)

30 September 2014: The Committee agreed to hold an evidence session with the Scottish Intercollegiate Guidelines Network (SIGN). Link to Official Report 30 September 2014 (509KB pdf)

25 November 2014: The Committee took evidence from John Kinsella, Chair, Sara Twaddle, Director, and Roberta James, Programme Lead, Scottish Intercollegiate Guidelines Network. The Committee agreed to invite the Scottish Intercollegiate Guidelines Network to consider developing a guideline and to consider a paper by the clerk at its next meeting. Link to Official Report 25 November 2014

9 December 2014: The Committee agreed to write to the Scottish Intercollegiate Guidelines Network (SIGN) forwarding the evidence it has received, including patient testimonies and the suggestion by the petitioner of specific areas for investigation. SIGN would be invited to work with the petitioner to initiate the process for developing guidelines in the area of diagnosis and treatment of thyroid conditions and formulating the necessary questions. The Committee also agreed to write to the Scottish Government. Link to Official Report 9 December 2014  

Written Submissions: 

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